What is Happening ?
Conference call every second Wednesday of each month 8:00 pm Eastern time
Reminder of our Teleconference this Wednesday, June 11 at 8 pm Toronto Time.
1-866-440-4486 Conference Number 2638102
Items to be discussed include:
Regional Reps
Brochure
Alberta Situation Update
Let me know if you want to include anything else.
Talk to you Wednesday,
A huge thank you to all the staff, students
and parents.
Without all your prayers and letters
we would not have accomplished this.
Trevor's Myozyme will now be paid
for by Government for the rest of his life.
Better yet! Other people will also
benefit by what was accomplished.
Alberta Government is looking at
paying for treatment of all rare diseases.
Alberta Health Minister Ron Liepert,
you are a very special man.Your personal
touch was so much appreciated.
You have made this possible because you
care about the people of Alberta.
Thank you, this would not have been
possible without your help and support.Trevor, Linda & Tyler