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Bc.
Edmonton Proclames Febuary, 29, 2008 Rare Disease Day
Hellen Tsenekos (Past President of CORD) and Ed Koning
(Vice President of CORD and President Canadian Fabry Association)
Trevor Pare
(Web Master: Canadian Association of Pompe)
Hellen Tsenekos, Trevor Pare and Linda Pare
Tyler Reilly, Trevor Pare' and Linda Pare
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Ross Perri (Member Canadian Fabry Association)
Arthur Ferris(Member Canadian Fabry Association) and Ed Koning (Vice President of CORD and President Canadian Fabry Association)
Hellen Tsenekos,Linda Pare, Councillar Jane Batty, Ross Perri, Ed Koning, Arthur Ferris, Athena, Akaysha and Trevor Pare
Linda Pare, Tyler Reilly, Councillar Jane Batty, Ross Perri, Ed Koning, Arthur Ferris,Trevor Pare
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Trevor meets Premier Ed Stelmach
Edmonton Proclames Febuary, 29,
2008 Rare Disease Day
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CTV coverage with Marni Kuhlman