Bc.

Links

AMDA

United Pompe

www.unitedpompe.com/

Australian Pompe's Association

users.tpg.com.au/cookie22/

C.O.R.D

www.raredisorders.ca

Genzyme's Pompe Website

http:// www.genzyme.ca

Myozyme Home Page

www.myozyme.com

UK Pompe Group

www.pompe.org.uk/

International Pompe Association IPA

Clinical Trials

Pompe disease explained in layman's terms by Kevin O' Donnell PhD.

Then go to Pompe Disease Guide then to A guide for families for

Portail Que'be'cois des Maladies Ge'ne'tiiques orphanelines.

http://clinicaltrials.gov/ct2/results?cond=%22Glycogen+Storage+Disease+Type+II%22

www.worldpompe.org/

http://www.amda-pompe.org/

www.pqmgo.org.

www.genzyme.com

Government Resouces

Articles

Information on management
of Pompe disease

Family Stories

Medical contacts

Francphone contact

Personal contacts

Links

Video

Other names for Pompe

What is happening?

About Pompe

Home

Trevor meets Premier Ed Stelmach

Edmonton Proclames Febuary, 29,
2008 Rare Disease Day

Frequently ask Questions