Articles

Bc.

Articles

On the 12th of November in Toronto Ontario the
Canadian Association of Pompe was officially form
with an executive body being voted in

Expensive drug gives hope to rare disease
suffering family wonders who will pay the bill

First therapy ever Approved in Canada for
ultra-rare form of Muscle Dystrophy

Lisgar resident helps door to new drug

Globe and Mail Article

Guy's response to Globe and Mail Article

Students Focus attention on 'orphan drug plan'
and raise awareness

Pompe Suffer hopes treatment will prolong life

Experimental drug is Ian's only hope

$500'000/a/year drug keeps Ian alive

Canada needs policy on 'Orphan drugs'

FDA approves Genzyme's Myozyme for
all patients with Pompe Disease

White House Honours Genzyme

Almost a miracle

Sa planche de salut est a` Pittsburgh

Cobaye pour s en sortir

Rare Disease Day Articles by CORD

Nidiagnostic, ni resources

The Enlightened Savage

Apples Magazine

Against all Odds

Metabolic Clinic tackles Chronic Rare diseases

Alberta teens pleads for $500,000 drug therapy

Rare diseases focus of awareness on feb 29

Red Advocate
Costly drug Crucial for teen

Rare disease focus of awareness on Feb 29
Toronto Star

The Montrel Gazette
The face of orphan illness Quebec urged to provide better services to people with genetic diseases

The Chronicalherald.ca

Calgary Sun Trevors greatest wish

Edmonton Sun Oiler Fan needs Help

Genzyme Study of Myozyme® for Late-Onset Pompe Patients Meets Co-Primary Efficacy Endpoints

Teen fears he may die without test drug

Important

Government Resouces

Information on management
of Pompe disease

Medical contacts

Francphone contact

Personal contacts

Other names for Pompe

What is happening?

Trevor meets Premier Ed Stelmach

Edmonton Proclames Febuary, 29,
2008 Rare Disease Day

Frequently ask Questions

The Enlightened Savage
Trevor's Update

Red Deer Avocate Apr 8 2008
Decision by May

NEW

Minister delivers promise in person
Apr 12/2008 Red advocate

Life-saving Mother's Day gift

Last Updated: Tuesday, May 13, 2008 | 11:47 AM ET
CBC News

Group calls for national policy to cover drugs for rare diseases

Sonia Sunger, Updated: Sun May. 11 2008 22:02:48
ctvedmonton.ca

NEW

Michelle Lang and Renata D'Aliesio, Calgary Herald
Published: Tuesday, May 13, 2008

Province to fund teen's treatment

NEW

Happy Mother's Day, Indeed

The Enlightened Savage

The Enlightened Savage

Sunday, May 11, 2008

Known Killer Holds 4 Albertans Hostage - No Response From Gov't

Tuesday, March 18, 2008

Sunday, April 6, 2008

Quick Note to a (formerly) Un-Named Alberta Minister

Thursday, April 10, 2008