Bc.
Articles
On the 12th of November in Toronto Ontario the
Canadian Association of Pompe was officially form
with an executive body being voted in
Expensive drug gives hope to rare disease
suffering family wonders who will pay the bill
First therapy ever Approved in Canada for
ultra-rare form of Muscle Dystrophy
Lisgar resident helps door to new drug
Globe and Mail Article
Guy's response to Globe and Mail Article
Students Focus attention on 'orphan drug plan'
and raise awareness
Pompe Suffer hopes treatment will prolong life
Experimental drug is Ian's only hope
$500'000/a/year drug keeps Ian alive
Canada needs policy on 'Orphan drugs'
FDA approves Genzyme's Myozyme for
all patients with Pompe Disease
White House Honours Genzyme
Almost a miracle
Sa planche de salut est a` Pittsburgh
Cobaye pour s en sortir
Rare Disease Day Articles by CORD
Nidiagnostic, ni resources
The Enlightened Savage
Apples Magazine
Against all Odds
Metabolic Clinic tackles Chronic Rare diseases
Alberta teens pleads for $500,000 drug therapy
Rare diseases focus of awareness on feb 29
Red Advocate
Costly drug Crucial for teen
Rare disease focus of awareness on Feb 29
Toronto Star
The Montrel Gazette
The face of orphan illness Quebec urged to provide better services to people with genetic diseases
The Chronicalherald.ca
Calgary Sun Trevors greatest wish
Edmonton Sun Oiler Fan needs Help
Genzyme Study of Myozyme® for Late-Onset Pompe Patients Meets Co-Primary Efficacy Endpoints
Teen fears he may die without test drug
Important
Government Resouces
Articles
Information on management
of Pompe disease
Family Stories
Medical contacts
Francphone contact
Personal contacts
Links
Video
Other names for Pompe
What is happening?
About Pompe
Home
Trevor meets Premier Ed Stelmach
Edmonton Proclames Febuary, 29,
2008 Rare Disease Day
Frequently ask Questions
The Enlightened Savage
Trevor's Update
Sick and Tired
Red Deer Avocate Apr 8 2008
Decision by May
NEW
Minister delivers promise in person
Apr 12/2008 Red advocate
